Jude has gone to the University of Iowa Hospitals and Clinics 25 times in the last 25 months. He is 43 months old.
A list of things Jude hates about going:
- doctors, med students, residents, fellows, nurses, etc.
- waiting rooms (they are not lobbies so let's not kid ourselves)
- exam rooms (they eye ones are about 3 feet wide and 10 feet long, great for a kid with bad balance)
- white coats
- blood pressure cuffs
- anyone who starts by saying, "I'm not going to hurt you"
We traded our minivan in for a Prius. For real, it gets almost 50 miles/gallon. It's pretty good when gas is almost $4/gallon. Does anyone remember filling up their moped for $0.85/gallon? I do. The first time I filled the Prius up, it clicked off at $28. I thought the nozzle needed to be readjusted. Nope, it was just full.
When we first started going, Chris and I would fill with anticipation and excitement. We were going to see "THE" specialist this time that was going to figure out what is wrong with our Juderbug so we could help him. It was a bit like this scene:
- Couldn't see (we think he sees up to 3 feet pretty well and has to be really close (3-6 inches) to see detail
- Couldn't hear (6 double ear infections in 6 months). Thank God for ear tubes.
- Was having seizures
He was not a pleasant baby. And he still has his moments. But every day is a little bit better.
After a failed attempt at a diagnosis in January, my sister saved the day. She said she knew a world-renouned pediatrician in Omaha that was willing to review ALL of Jude's medical records as a second opinion. We sent him the pile of papers.
Miracle #1 - This doctor e-mailed me back and said, "Sarah, I got through Jude's records a couple of times and have spoken to several different physicians about him. I, with your permission, sent a Cliff Notes version to Dr. Paul Lipkin at the Kennedy-Kreiger Institute in Baltimore. You can google it and find out about it. It is probably the foremost clinic in the world for children like Jude. So you should be hearing from him or someone in the near future. Hope to meet Jude sometime. If you are ever in Omaha headed to Hastings, please stop by. If you have any other questions, please give me a call. You have my cell number." I had his cell number!
Miracle #2 - I asked how we could pay him or what we owed. He said, "No worry. Just do something nice for someone who needs it. I am sure that you do this every day." I have tried to remember this often.
Miracle #3 - I called Dr. Lipkin the day I started this blog. I was mad. And guess what, he called me back. He wants to see Jude. We have an appointment for Nov. 7.
So perhaps we will still get a chance to meet The Wonderful Wizard of Oz yet.
Driving along life
Chris always beside me