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The Little C

9/17/2012

12 Comments

 
What do Wanda Sykes, Judy Blume and I all have in common? We've all been diagnosed with ductal carcinoma in situ (DCIS) otherwise known as breast cancer stage 0. Stage 0? If you're going to get breast cancer, I guess this is the kind you want. I’m not even mad about it. I guess I think I’m lucky. So please don't say you are sorry.

Wanda Sykes said she kept it quiet because she didn't want to become the cancer "poster child.” "How many things could I have? I'm black, then lesbian," she joked. "I can't be the poster child for everything! At least with the LGBT issues we get a parade, we get a float, it's a party. I was real hesitant about doing this because, I hate walking. I got a lot of walks coming up!"
(One correction in this video: Wanda said this surgery reduced her chance of breast cancer to 0% when it’s actually lowered to 5-10%). 

I love Wanda and her attitude. Like her, with the support of my doctors, I've decided to eliminate the enemy as much a possible with a double mastectomy and same-surgery reconstruction. I'm not dancing with this devil. Breast cancer affected my maternal grandmother at 39. It affected my maternal aunt at 41. They both survived. My mother was not so lucky. She died of uterine cancer at age 46. I was 15 years old. I’m only 36 now.

What I've learned in the few weeks that I've been dealing with this, is that the treatment options are very personal to each woman. It really depends on the individual’s age, risk factors (including family history) etc. I'm so lucky that I was referred to the high-risk cancer clinic at the University of Iowa a few years ago. But I will tell you that having mammograms (squeeze away!) and breast MRIs (face down in a tube for 45 minutes while it sounds like a car alarm is going off) every six months is not fun. Even less fun was the stereotactic breast biopsy which I likened to being trapped face down by your breast, unable to move any part of your body for 40 minutes, while they shoot a needle the size of drinking straw into you. If I would have chosen a more conservative treatment (lumpectomy and radiation), my life would forever involve these tests waiting for it to come back. That was not for me.

Don’t get me wrong, I love my breasts. They have been with me on Joe’s ledge when I danced the night away, they held up my strapless wedding dress and they have fed both my children. But this graphic says it all.
Picture
While I wrote this, Chris gave the kids a bath (like he always does) and then he folded the laundry. And the reality is that while this is a deeply personal decision, it will affect many, many others—especially my family. The recovery involves three to six weeks of no lifting anything heavier than 5 pounds and lots of taking it easy. We’ve been so blessed with offers to help. A good friend is helping me organize it all. I’m going to post updates on this blog, so feel free to sign up to receive e-mails when it’s updated if you like.

I’ve also enrolled in a clinical study at the University of Iowa. I did it for a lot of good reasons, but most of all for Lucy. This affects her now too. My surgery is Oct. 10. It’s one day before she turns 6. Hopefully, I’ll be coming home that day. She said it’s okay because I’ll probably be bringing her a present, “as long as it’s light” she added.
So, we will end on a cinquain that Lucy wrote about a year ago. Our first poem together. Hopefully there will be many more poems in the years ahead.

Dog
Furry, Hungry
Barks, Eats, Fetches
I Like That Dog Licker
Bone-Eater

12 Comments
Niki Myszka
9/17/2012 06:01:21 am

Let us know if you need anything as well. With our odd work schedules, we are likely to be around in the middle of the day. I'm happy you caught it this early. But I am sad you'll miss the annual Halloween party. :(

Reply
Jennifer Garrett
9/17/2012 06:52:19 am

You are a strong woman! You have a wonderful and supportive family! You have friends you can call on! Thanks for sharing your story and know you will be in our prayers!

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Angela Johnson
9/17/2012 07:06:26 am

I love reading your blog. If you need anything you know where I live. :)

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Sharon Saddoris
9/17/2012 08:10:45 am

Sarah, I just am reminded again how much I love you and your family. I am convinced that you should use your time that you "lifting is restricted", to write the first book that is in you. :o)

Love and Prayers,

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Kristin Nelson
9/17/2012 12:00:54 pm

Sarah, I love reading your blog (even though I wish you wouldn't have had to write this installment). Just last week a fellow physician/friend of mine was diagnosed with breast cancer. I'm going to send her your blog site. You are so uplifting and just charge forward no matter what is going on in your life. You are inspiring!

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Judy Corkery
9/17/2012 12:02:11 pm

You are my heroine Sarah. I wish I had known you when I was a young
wife and mother. I could have used your wisdom and your faith. Still time for me to learn a life lesson from you.

God Bless!

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Dan Garrett
9/19/2012 12:13:27 am

Sarah - you are a remarkable woman! Your actions not only demonstrate courage, but deep faith and conviction. Know that my thought and well wishes are with you Chris and kids. -Dan

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Vicki Staebell
9/24/2012 06:37:16 am

Thanks for sharing your thoughts. You have an amazing attitude and family support. Oct 10 will be a day I'm giving up for you. God Bless You.

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Connie Tolan
10/10/2012 06:11:10 am

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Linda Eichhorn
10/11/2012 08:06:57 am

Hope October 10 was a great day for you. October 9 was my 2nd reconstruction phase surgery. I started with DCIS on my left side and decided to have the bi-lateral mastectomy with immediate reconstruction. There was a spot on my right breast which I was told to "watch". I did not want to watch, wait, or see what happened. It was a smart decision, I had a stage 2 invasive breast cancer tumor on the spot I was supposed to watch. I had all the tests you had, hated them. I have been through chemo, lost my hair, and am getting back to normal as quick as I can. I have had a great group of doctors who guided me through this mess. I lost a younger sister to breast cancer in 2002. I was 59 when I was diagnosed. So we are in the great group of DCIS people. Bless you for sharing and telling your story. Telling the story is very important. Good thoughts to you and happy endings!

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Suzanne Alfiero
10/11/2012 12:20:19 pm

Today is the one year anniversary of my surgery for DCIS (pagets) when they found several cells of invasive cancer. Mastectomy, reconstruction & chemo are now behind me & I have one more Herceptin treatment to go. It is a long road & a challenging one....take it one day at a time, know you are not alone & take all the help that is offered to you! I am 46.

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visit the site link
5/21/2013 09:52:35 pm

After reading your story, I must say you are a strong and bold woman. I do not think I can even manage to go through half of what you have been through. Keep faith in god and be positive always!

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